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Life After Encephalitis: A Narrative Approach

About the Book

Life After Encephalitis provides a unique insight into the experiences of those affected by encephalitis, sharing the rich, perceptive, and often powerful, narratives of survivors and family members. It shows how listening to patient and family narratives can help us to understand how they make sense of what has happened to them, and also help professionals better understand and engage with them in practice. The book will also be useful for considering narratives associated with brain injuries from other causes, for example traumatic brain injury.

Life After Encephalitis will appeal to a wide range of people: professionals working in neurology and rehabilitation, and also to and survivors of encephalitis, their families, and carers.

Author's Biography

Dr Ava Easton is a health scientist and researcher specialising in encephalitis, acquired brain injury, and neuro-narratives. She has worked at The Encephalitis Society since 2000, and became Chief Executive in 2011. Ava is an Honorary Fellow at the University of Liverpool and lectures around the world on encephalitis and its consequences. Ava is also Vice-Chair of the United Kingdom Acquired Brain Injury Forum (UKABIF); and on the editorial boards of Brain Injury Journal and B21 magazine.  Follow her day-to-day work on Twitter: @encephalitisava.

Listen to Ava's Blogs

Blog Entry 1 - The origins of Life After Encephalitis

Blog Entry 2 - Interview with Ava


"Dr Ava Easton has done something remarkable with this book: she has given life and support to patients and families living through this silent disease. From the first-person cases to the in-depth research and passionate dedication to her work as the head of the Encephalitis Society, Ava Easton has given us a gift with this tremendously important book". - Susannah Cahalan, author of Brain On Fire: My Month of Madness

 "This book is equally relevant to survivors, family members, carers, neurologists, psychiatrists, nurses, relatives and even disinterested readers. Ava Easton has brought the same demotic wisdom to this book that she exercises as the inspirational CEO of The Encephalitis Society. Over the years she has taken what was a deadly but obscure illness out to the world, and explained it simply and cogently to people who had no reason to have thought about it before, and to experts who had almost certainly never thought about it in those terms before.

The Encephalitis Society has brought together top professionals such as neurologist Professor Tom Solomon with survivors such as me, bereaved family members, and those unfortunate enough to still be living with the after-effects of encephalitis to create a wonderful, and strangely uplifting extended family. There is no hierarchy in The Society – but if Dr Easton had to choose my guess is that she’d rather hear first from the survivors, then the experts.

She has brought the same philosophy to Life After Encephalitis. There is a useful explanation of the different forms of encephalitis, pre­vention measures, experts have their say, but at the heart of the book is a series of beautifully written, desperately moving first-hand accounts from those who have lived with the illness". – Simon Hattenstone, The Guardian

"Encephalitis is undoubtedly a thief, and Easton does an excellent job at explaining why." - Jules Morgan, The Lancet Neurology

Click HERE to read the full review in The Lancet Neurology.

Get your Copy

You can buy your copy of the book here: Routledge and you will get a 20% discount available with the code: FLR40

You can buy a limited edition signed copy of the book from our Shop from the 4th March

Good Reads have launched a competition to win a copy of the book - it's free to enter and all you have to do is sign up here: Good Reads Competition

The Encephalitis Society is the operating name of the Encephalitis Support Group which is a registered Charity and Company Limited by Guarantee.

Registered in England and Wales No. 4189027. Registered Office as above. Registered Charity No. 1087843.