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Directory of Other Organisations

AFASIC provides support for parents, children and young people who have speech, language and communication difficulties. Tel 0300 666 9410

Organisation providing activity holidays specifically for children with a disability, their family and friends. 3 centres in England.

Carers Direct is a national information, advice and support service for carers in England. It provides a free, confidential helpline seven days a week on 0300 123 1053.

Provides an information and advice service for anyone with a caring role. Tel: 0808 808 7777 CarersLine

Cerebra works to ensure that up-to-date, evidence-based knowledge is available and applied for the prevention of brain damage and for proven treatments. They also organise a wide range of training seminars, workshops and projects for parents, professionals and children themselves.

Tel: 0800 328 1159

Provides information on the many aspects of cerebral palsy.

Cerebral Palsy Guidance was created to provide answers and assistance to parents of a child with cerebral palsy.

Contact a Family provides support and advice to parents whatever the medical condition of their child. Helpline 0808 808 3555

The Child Brain Injury (CBIT) supports anyone in the United Kingdom affected by childhood acquired brain injury. They provide information, support and training to families and professionals.   Tel 0303 303 2248

Their mission is to provide support to children and their families/carers affected by Encephalitis, to raise awareness, provide desperately needed funding to support further research into the causes, symptoms and potential cures for Encephalitis. And also to provide funding for essential training for those people affected by Encephalitis/ABI - children, families, schools & health care professionals

  • ERIC (Education and Resources for Improving Childhood Continence) (

Provides advice and information on bedwetting, constipation, soiling and incontinence.

Tel: 0845 370 8008

Provides advice, practical support and campaigns for single parents. Tel: 0808 802 0925

Provides grants and information for families looking after severely disabled or seriously ill children under 16. Tel: 01904 621115

The Hemispherectomy Foundation, a non-profit organization, was founded to provide emotional, financial, and educational support to individuals and their families who have undergone, or will undergo, a hemispherectomy or similar brain surgery.

Supports children with speech and language difficulties and their families.

Tel: 0845 225 4071

Gives independent advice for parents who are uncertain about, or disagree with, the LEA'S interpretation of their child's special educational needs. Tel: 0800 018 4016

Offers children aged between 3 and 18 who have a life threatening illness, a special wish.            Tel: 01276 40 50 60

NVA is a virtual school that provides education to children (8-18) unable to attend mainstream schools. Tel: 020 84248475

Provides a home-visiting educational service for pre-school children with additional support needs in England and Wales

Support, advice and information for people who grow up with a brother or sister with a disability , special need or illness. Tel: 01535 645453

Offers information and support to families of children and young people who have special educational needs in Wales. Tel: 0845 1203730

Offers children aged between 4 and 18 who have a life threatening illness, a special wish.            Tel: 020 7262 2881

Offers information and support to parents/carers throughout Scotland who seek to take personal responsibility for the education of their children.

Provides mobility aids usually lightweight or powered wheelchairs to children with locomotion disabilities. Tel: 020 7233 6600

They provide expert knowledge regarding emotional well being and mental health to professionals, parents and young people through Parents' Helpline, online resources, training and development, outreach work and publications:Telephone-Parent Helpline 08088025544


The Encephalitis Society is the operating name of the Encephalitis Support Group which is a registered Charity and Company Limited by Guarantee.

Registered in England and Wales No. 4189027. Registered Office as above. Registered Charity No. 1087843.